O.K, I apologise in advance for the rant but I need to vent.
Like a few of us around here I have secondary hypogonadism. To cut a long story short over the course of nearly a year I managed to convince my docs that a shorter acting test ester, self administered in divided doses throughout the week would, be the best option for me to treat my condition. For the record, getting the Drs to actually recognize that there was one in the first place was a challenge in itself.
So I get a prescription, convince them that 100mg per week is a good place to start and I am left to self administer with periodic assessments, every 3 months or so. Good stuff.
However, intituitively, I knew that something was stil awry. ALthough a good 60% of my symptoms diminshed (great!) a rough estimate would be that 40% persisted. So I decided to run a few labs, additional to those that NHS would fund at the time.
Well, results of a couple of thyroid function tests, over a 3 month period (I decided to test twice over this time to have a series of data that I could present and not just an isolated result) revealed that I may also have secondary hypothyroidism.
1st results (end of last year)
2nd result (a couple of weeks ago)
(data is in SI units!)
- = low
Armed with my data, a handful of studies for reference and a little bit of optimism, I see my endocrinologist and present him the data, discuss my theories and describe my symptoms.
Sadly, this feel on deaf ears. Although in both instances my TSH is clearly elevated and my fT3 is low - by the private lab’s reference data I used to run the test - they were not outside the lab reference values for the area I live in (by 0.1 and 0.3 pmmol!)
For those that do not know, in the U.K we often play a ‘postcode lottery’ when it comes to these things. Although the NHS stands for the National Health Service, different counties may have different criteria for services. For me, this means no treatment for my thyroid given the data. Clearly another sad case of treating statistics and not symptoms.
Thus I am left with low temperature, cold intolerance, yellow pigmentation, brain fog, irratability and an ever growing disdain for a failing health service.
O.K, rant over - sorry