New member as of today. I’ve been reading many posts on here over the last week and thought I’d give it a shot and ask for some feedback. Thanks in advance for any suggestions.
I’m 34 yrs old and only have my right testicle. I had testicular cancer (TC) on the left and had it removed in 2016. It came back in my abdominal lymph nodes in 2017 and I went through 4 tough cycles of chemo. So far, I’ve been all clear since, other than a small nodule on my lung that they are monitoring. It was great that the chemo killed the cancer, but it also kills the cells inside the testicle. Typically testosterone and fertility take a hit but usually rebound 1 year after chemo ends. I ended chemo in March 2018.
In May last year I ended up with gyno. I was told it happened because my T to E ratio was off from the chemo/surgery. I was put on anastrozole .25mg EOD to get rid of the gyno, but after several days I felt like death and stopped it. The breast tenderness eventually faded away, but the tissue is still there. Fast forward to today, and the past year has been rough. My libido is very low (I can get erections with manual stimulation only, even then they aren’t like they used to be), my energy is gone, I’m always tired and often feel depressed. I used to workout a ton and play sports, and now whenever I muster up the energy to lift lightweight, I’m sore for 8 days! I didn’t want to do HRT if possible, but at this point (even with normal values) I feel like something needs to be done. I honestly feel that my symptoms are T related. Here is a history of my endocrine labs and my most recent CBC, CMP:
Here’s where my problem lies. My Endocrinologist is suggesting a trial of TC, HCG, and AI (if needed at some point). I would be perfectly fine with that if it weren’t for the fact that HCG blood tests are used as a tumor marker to detect testicular cancer in the body (when HCG is elevated on the blood test, it means the cancer is back). There are 2 other markers (AFP, LDH), and I get all 3 drawn every 3 months. But essentially, taking HCG injections will make that test no longer useful for my medical team. My oncologist has no info on whether or not HCG can cause existing testicular cancer to grow more, and my endo has never treated a TC survivor…!
I’m a little stuck on my options and was hoping some of you have experience with this or have some insight to share. Please let me know what you think. If there is a way to get around using HCG while still keeping the testicle from atrophying, I’d love to hear it. I’d be ok taking HCG if I had some reassurance it wouldn’t aggravate cancer (the other 2 tumor markers would be sufficient for my medical team). Not sure if clomid can possibly help?? I’m a nurse by profession and have a good understanding of the basics and would love some feedback.
I really appreciate it!!!