I suffer from low T and have probably always had low T. I had my first
blood test at 20 and already back then it was really low. My LH is also
usually low. I have been through many tests. Klinefelter was ruled out,
I also had a pituitary MRI which was normal and I had a GnRh test. But
the result was that my serum T is simply too low.
It took me a long time to finally find a doctor who didn’t
give me the your levels are still in the normal range BS and who is willing
to put me on TRT. 2 weeks ago I started with gel (50mg/day) but so far I
don’t feel any difference.
Anyway, the thing is this: Over all the years where I kept track of my t-levels there were times where my serum T was rather low but my free T
was really high due to low SHBG. This wasn’t the case in every test but
in a few tests and then I was told that as long as free T is high it’s all
good. But then I asked myself if my free T is so high then why do I have all these symptoms? (ridiculously low strength, way too little muscle mass, fat distribution which looks feminine)
I told this to the endocrinologist and he said that he’ll also to a sensitivity CAG test. I am waiting for the results of this test but I already tried to read up a bit on CAG and the stuff I read now worries me.
As far as I understand it CAG better be short than long cause long CAG means you’re insensitive to testosterone.
And what really worries me is that I also read that CAG length also seems to be linked with other syndromes, like Kennedy Syndrome which is a neurodegenerative disease!
The whole time I thought that even if I should have long CAG then this only means that I need higher testosterone levels in order to feel normal than normal men. I thought it’s not that much of a deal but if long CAG is linked to diseases then this changes everything. I’m pretty anxious now about the results of the test.
Has anyone here had such a CAG test or does anyone have long CAG?