- Does your therapist think that PNE / PN is virtually none existent as well?
I'm not sure if he thinks it's virtually non existent, but this is more my opinion on the matter. I've dealt with this for a long time and talked to many people. This is the conclusion I came to.
- How did your pain develop, in other words was it all at once are a progressive thing?
Pain started as tightness feeling in genitials. Progressed to tightness in pelvic floor (especially after deadlifts or squats) and then eventually to very intense spasms. This was definitely a progressive thing.
- Are your pretty much 100% now?
I would say I'm 90% now. I have to keep up with mobility work. I got messed up from another therapy in trying to treat this (not one I mentioned, it was involving injections). This set me back the most and what I'm trying to fix now.
- Supposing my pain gets worse, do you recommend that I seek manual therapy first before spending an ass load of money on doctors? I ask because I am a teacher and my wife is a office manager. We have a baby on the way and or insurance sucks ($3,800) dollar deductible, so money is tight, I would rather spend it where it will make a difference.
If I were you, I would contact the therapist and ask his opinion. He could point you in the right direction based on where you are at now (with your problems). Manual therapy is also quick (only took 6 visits, was about $500 total). This isn't as expensive to treat as you think cause most of the stuff revolves around mobility, proper body mechanics, and proper exercise (all free and stuff you do alone).
- Do most people with PNE (if it exist) have extreme pain all of the time? Did you? Or did the pain come and go?
Yeah, it's pretty extreme all the time (For PNE suffers). Apparently, the only thing that makes it better is sitting on the toilet or in bed. My pain would be at a steady state (from the residual tension) and then get worse when I would exercise (tension would increase). Now, the tension is pretty much gone because I addressed the underlying issues.
- Did you ever have pain in your penis?(If you want to respond to this via PM please do)
Yep, I definitely did. This was my pain symptom at first. It was terrible. It was just on one side. This is why doctors thought it was peyronnies disease starting up. But really, it was just the pelvic floor and surrounding muscles on that side being tight. Once it loosens up (mainly ART to adductors helped), the pain went away. Is it a pulling type pain?