I have hold off talking about this for as long as I can (denial), but the last 4 weeks I am having what I thought were just random palpitations and strong hot pumping (bloating) in the abdomen you get from changing dosages and swelling of both legs (edema). I also have pressure behind the cheek bones, vision changes, sinuses swelling up closed, hearing changes, teeth feel strange and numbness and tingling in the feet and hands.
My chronic cough is in full swing and has been treatment resistant for over a year, acid reflux has stumped doctors and is also treatment resistant for the same amount of time. According to doctors there is no reflux occurring.
I stopped TRT one week ago, the symptoms have subsided a little. My last blood labs as of 4/25 was 450 ng/dL which I shouldn’t be having trouble and I have pushed higher without symptoms in the last 6 months.
Dr. Saya has suggested I see a vascular surgeon/cardiologist as soon as possible. I have an appointment Friday with a vascular surgeon and am worried if I’m not on TRT, he will be unable to find anything wrong since the symptoms are less when not injecting testosterone.
Dr. Saya threw around some big words that have hit me hard, IVC (inferior vena cava) or Aortic embolism do to plaque buildup narrowing the aortic valve could be causing these symptoms. I have always had these symptoms when changing dosages which resolved after 6 weeks, but are happening at all time now even after a week of no testosterone.
Been in and out of the ER for more than a week, legs swelling what looks like edema and throbbing sensation in legs probably do to edema affecting blood flow, now I’m noticing throbbing pain in my lower back and chest pains on both sides. New symptoms continue to present themselves the more time pases.
Now looking back 4 years ago when testosterone suddenly decrease over a years time, I now left wondering if the cause of low testosterone is back to finish the job.
I had a colonoscopy yesterday and a small cyst was removed, but everything looks fine, healthy gut. Monday I’m getting an ultrasound of the kidneys and Friday to see a vascular surgeon to see what is going on with my circulatory system.
I have always struggled on TRT, never really finding a range where I feel normal for long, maybe whatever is happening is the reason why.
Iron deficiency without anemia
HGB 15.4 g/dL 14.0 - 18.0 g/dL
HCT 46.5 % 42.0 - 52.0 %
RBC 5.72 Mill/mcL 4.70 - 6.10 Mill/mcL
Platelets 269 x1000/mcL 130 - 400 x1000/mcL
MCV 81.3 fL 80.0 - 94.0 fL
MCH Low 26.9 pg/cell 27.0 - 35.0 pg/cell = average mass of hemoglobin is small.
Iron 40 mcg/dL 59 - 158 mcg/dL
Iron saturation 12 % 20 - 50 %
Total Iron Binding Capacity 498 mcg/dL 250 - 425 mcg/dL
Vitamin D 12 ng/mL30 - 100 ng/mL
Potassium 3.3 mEq/L 3.5 - 5.0 mEq/L