T Nation

Pituitary Tumor & T Replacement


#1

I am new to this site, and was hoping for some help from the community of others who are knowledgeable and experienced in Testosterone. I am a 36 year old male who three years ago was diagnosed with a pituitary tumor. The tumor was large, causes me to have high prolactin (hormone women produce while pregnant for breast milk) and low testosterone. Looking back at my life, I don’t know if I have ever had normal levels.

After my first week of T replacement I felt like an alien in a different body. I was also given Cabergoline to shrink the tumor and reduce prolactin levels. I could not stop thinking about sex, lost weight, and my facial bone structure changed.

I am wondering if anyone else did hormone replacement later on in life, and how they felt compared to high school or their younger days. I am struggling with the psychology of having this higher sex drive. I have problems forming relationships and am wondering if anyone has dealt with similar issues? Did it change anyone else’s behaviors and thoughts other than obvious higher sex drive? .

Thanks!


#2

You are becoming virilized and that can be quite profound. Some effects will level off with time.

Sounds like you currently do not have a wife or GF.

Many who had normal development who had a decline in T levels and started TRT late in life can go through much of what you describe to greater or lessor degrees. It is normal.

Did the adinoma become large enough to affect your optic nerves? A reduction of with of peripheral vision.

TRT done right involves a lot more than just T. What is been done to preserver your fertility?

Please describe your TRT doses in mg’s in detail.
Do you have on TRT lab work to post - with lab ranges?

Please read the stickies found here: About the T Replacement Category

  • advice for new guys - need more info about you
  • things that damage your hormones
  • protocol for injections
  • finding a TRT doc

Evaluate your overall thyroid function by checking oral body temperatures as per the thyroid basics sticky. Thyroid hormone fT3 is what gets the job done and it regulates mitochondrial activity, the source of ATP which is the universal currency of cellular energy. This is part of the body’s temperature control loop. This can get messed up if you are iodine deficient. In many countries, you need to be using iodized salt. Other countries add iodine to dairy or bread.

KSman is simply a regular member on this site. Nothing more other than highly active.


#3

Thanks for the response, I greatly appreciate it. I do have a lot of blood tests that have been done. I do not want to post them for privacy but I will give the numbers and what I have done.

I first requested my testosterone checked when I was 29 years old and I was working out, eating healthy, and remaining active. My free testosterone was 113. The doctor just gave me testosterone instead of sending me to a endocrinologist.

I then started having seizures which is when they found the tumor. I then went to a new primary doctor and my levels were tested and testosterone was 223 and my prolactin was 1041.

My last blood test showed my testosterone was 799 and my prolactin was 29. My endo discussed with me that if I wanted children that I would then need to come off of my testosterone. My fertility has not been preserved but my endo mentioned if I wanted to have kids to come off the testosterone.

I just got out of a relationship and this is what is leading me to more research into the psychology of this. The tumor was 4 cm by 3 cm which was pushing on my optic nerves which caused me to tilt my head to the right to see level. No loss in peripheral vision.

I have seen two neurosurgeons who did not want surgery because the first said it was too big, therefore my pituitary gland is already too damaged. The 2nd won’t consider surgery but I am wondering if it has to do with my bad insurance or just simple fact of damage done.

The research I have done on my own, when I hear the before and after stories, the surgery sounds like a great option, but I’m sure youtube videos and online articles may not be the best information available, but I have spent a lot of time looking into this.

I have struggled with forming relationships, depression, mood swings, lack of focus etc. since I was young. In high school, I just wanted to be left alone. If a girl told me she liked me, I just never was interested, and didn’t realize how odd this was until I am now having normal hormones and how it completely changed me.

When I talk to my doctors about this subject, I continually get bounced around. I don’t know if there are learned behaviors that are beyond repair, or my insurance sucks and they don’t want to deal with the headache of my problems for little return.

I am stuck in this middle zone of life. I am unable to hold a job, I have been denied disability, I had to withdraw from school, and I had to live with my mom for the last couple years when the seizures started.

I don’t expect answers to all my problems but any opinion is appreciated.