Thanks for the response, I greatly appreciate it. I do have a lot of blood tests that have been done. I do not want to post them for privacy but I will give the numbers and what I have done.
I first requested my testosterone checked when I was 29 years old and I was working out, eating healthy, and remaining active. My free testosterone was 113. The doctor just gave me testosterone instead of sending me to a endocrinologist.
I then started having seizures which is when they found the tumor. I then went to a new primary doctor and my levels were tested and testosterone was 223 and my prolactin was 1041.
My last blood test showed my testosterone was 799 and my prolactin was 29. My endo discussed with me that if I wanted children that I would then need to come off of my testosterone. My fertility has not been preserved but my endo mentioned if I wanted to have kids to come off the testosterone.
I just got out of a relationship and this is what is leading me to more research into the psychology of this. The tumor was 4 cm by 3 cm which was pushing on my optic nerves which caused me to tilt my head to the right to see level. No loss in peripheral vision.
I have seen two neurosurgeons who did not want surgery because the first said it was too big, therefore my pituitary gland is already too damaged. The 2nd won’t consider surgery but I am wondering if it has to do with my bad insurance or just simple fact of damage done.
The research I have done on my own, when I hear the before and after stories, the surgery sounds like a great option, but I’m sure youtube videos and online articles may not be the best information available, but I have spent a lot of time looking into this.
I have struggled with forming relationships, depression, mood swings, lack of focus etc. since I was young. In high school, I just wanted to be left alone. If a girl told me she liked me, I just never was interested, and didn’t realize how odd this was until I am now having normal hormones and how it completely changed me.
When I talk to my doctors about this subject, I continually get bounced around. I don’t know if there are learned behaviors that are beyond repair, or my insurance sucks and they don’t want to deal with the headache of my problems for little return.
I am stuck in this middle zone of life. I am unable to hold a job, I have been denied disability, I had to withdraw from school, and I had to live with my mom for the last couple years when the seizures started.
I don’t expect answers to all my problems but any opinion is appreciated.