Help would be much appreciated - (Please excuse the long winded post)
42 years old. Height 6ft 5" Weight 15st11lb.
Skinny as a child until 10years old. Then chubby till16. Then overweight from 16 - 21.
Started gym training properly at 22years old (19 stone to 16 stone very low fat).
Trained continuously from 22 - 37 (ridiculous amounts, i’m certain that I was heavily over training almost every day)
Colic as a child. Chronic migraines from about 10 years old until 13.
Very strange Thyroid issues from 20-22 years old. (Drinking vast quantities of water, unbelievable thirst - totally disrupted sleep, fight or flight feelings). Was fobbed off at the time by endocrinologist - “Post Viral Thryroiditis” he didn’t have a clue. Also terrible tonsil inflammation/soreness for 3 years.
This health scare prompted me to start gym training and try to take my health seriously.
I have had thirst issues twice since, bad enough to go to doctor, fobbed off again, no thyroid tests done. I have not notes relating to my original Thyroid condition as I was sent to a specialist, so my doctor has no record!
N.B. I have always suffered more than most with headaches and terrible hangovers.
Throughout my 20’s and 30’s I knew something was not right, but had no idea what it was, I have no faith in traditional doctors solving any issues.
At 37years old, all of a sudden, started getting chronic migraines again (4 days in bed etc). Also suffering mild hangover like headaches every day.
Went to doctor, sent me to brain specialist, MRI etc, lots of scans, all fine. Given a load of heavy duty pills to take (didn’t touch tem).
Wife went away and started researching gut health. Immediately cut out gluten - made a huge difference, daily hangover headache gone. Still getting migraines, until 6 months ago. Tried everything. Cut out milk (milk only, not butter) - not a single migraine since.
We have long concluded that i’m suffering from allergies caused by "Leaky Gut,"
Elder sister had, what seems to be the flip side, Endomitriosis and Crohns Disease.
Since getting Migraines, I noticed my gym performance deteriorate, not matter what effort I put in. Muscle mass reduced significantly plus fat gain. Again to doctor - my wife suspected thyroid. Doctor tested TSH at 2.5, therefore I was deemed fine.
Please note - oral temperature very low all day. Anything for 34 degrees to an absolute rare max of 36.5
Very difficult for me to lose fat and i’m always cold especially hands and feet.
As, I say, I was not happy (plus not convinced by local labs here in Jersey, Channel Islands).
Got a blood test done in London.
TSH 3.75 ml/UL 0.27-4.2
Free Thyroxine 16.3 pmol/L 12-22
T4 91.1 nmol/L 59-154
Free T3 5.06 pmol/L 3.1-6.8
Reverse T3 19 ng/dL 10-24
Thyroglobulin Antibody 10.6 IU/mL 0-115
Thyroid Peroxidase 9.45 IU/mL 0-34
B12 102.6 pmol/L 25.1-165
Folate 10.38 ug/L 2.91-50
Vitamin D 166 nmol/L 50-200
Inflammation Marker CRP 0.1 mg/L 0-5
Ferritin 263 ug/L 30-400
Magnesium 0.93 nmol/L 0.6-1
DHEA 6.39 umol/L 0.44-13.4
Follicle 4.92 IU/L 1.5-12.4
Luteinising Hormone 6.44 IU/L 1.7-8.6
Testosterone 26.3 nmol/L 7.6-31.4
Free-T (calculated) 0.282 0.3-1
THIS HAS BEEN CONFIRMED by an actual separate Free-T test recently
SHBG 90.5 - Endocrinologist chuckled and said he had never seen a value this high in anyone outside of women on the pill. 16-55
Free Androgen Index 29.06 Ratio 24-104
17-BETA Oestradiol 107 pmol/L 0-192
Went to Doctor with these results - he said I was in range. I said, I am 42 not 92, I have no libido and am always tired and cold.
Sent me to private endocrinologist.
Double checked results and then gave me 3 options.
1/ Test Gel
2/ HCG? stimulate my own production of test
I opted for Nebido and had 1st jab on Novemeber 22nd.
I gained 7lbs in first week and nipples super sensitive etc.
Have since read in a few places that I should be getting treated with Testosterone with a shorter Ester once a week - I am not Low T but very high SHBG.
I also tried asking Doc for an A.I. but he would not prescribe.
I have, so far not felt a single benefit on Nebido. Occasionaly I now have a half hearted morning erection.
N.B. until the last 3/4 years I have had no Libido issues, in fact quite the opposite.
I have an appointment with the Endo at 4om tomorrow and was wondering which at to go. He says my Thyroid is fine. I also mentioned my persistently low temp and inability to lose weight. He looked at me like I had two heads and told me that everyone has a different temperature!!
Any advice very much appreciated!!
One last thing - I wake up almost every day at 4am, no matter what I do and am wondering if there may also be an adrenal issue at play?
Many thanks in advance