Good day, thank you for responding. I have to get one thing straight first. The automatic spell checker caught me off guard until now. I had and iliostomy procedure. That is two stages of surgery.
1st stage is they cut out my hole large intestine, then they cut off 2 feet of good small intestine and make a small fist size pouch out of it and put and entrance tube on one end(this hooks up to the small intestine)and an exit tube (which hooks up the the rectom)Then fit me with a colostomy bag. I was like this for 4 months while the new pouch that they made for me healed (during this time the pouch was attached to my rectom already and the other end to my stomach lining so it wouldn't float around). So during this time I have some blooding discharge and bile from the pouch naturally excreting fluid.
After the four months healing I had stage 2 surgery. This time they took the colostomy bag off and tucked it back into my stomach and hooked it up to the pouch. This pouch is now like and new colon, just alot smaller. It took about 12 to 18 months for the body to get used to and for the small intestine to learn to absorb more because of no larg intestine. The pouch absorbs very little so now my small intestine absorbs everything. If i eat while I drink it makes food go through too fast. I can eat a pretty big meal but my digestion time is down to 6 hours average (if I eat at 1pm its out by 7pm). I do go to the bathroom average of 6 to 8 times a day if I eat 5 or 6 meals a day.
On the your questions.
1) Yes I did have pain in the hips and glutes when it was flared up. I was on prednisone for 12 years out of 14 I had the disease. (thats a corticostol steroid) I forget how to spell it, but its the other catibalic kind of steroids.
2)The doctor in Toronoto took biopsies (tissue samples of the ulcerative intestine) and analysed them in a lab, I have a scope down my throat the check small intestine and one up my butt to check the larg intestine (i do one up the butt every year to make sure the pouch is in good working order), and I also had 3 barium enamas and one ultra sound. All results pointed to Ulceratice colitis.
3) Now that I have the pouch I need to stay away from nuts, seeds, vegetable skins, white bread, white pasta and white rice (I can eat brown/whole wheat stuff, I can't eat spicy food or refined sugars. So I eat good natural food (all meats, vegetables without skin, banana's only for fruit, yams, peanut butter and I can tolerate protien powders and I can eat all the eggs I can handle.
Before my sergery I have ate mostly fish, chicken, vegies, fruits and lots of fibre for colon health. I was on 4 prednisone a day and 14 accicole (not sure if thats how is spelled) for 13 years straight.
4) There is no actual known cause of it but recently there has been a connection with msg, certain additives in some foods like formaldehyde, chlorine dioxide, trans fats, and other human made additives that kill all the bacterias in your stomach.
I do recomend to everyone who has this as i have a lot of close friends that are sick with it, that probiotics and preboitics are taken (preferable via up the butt ) so they go right to the area but atleast by mouth, a good liquid vitamin, and eat as much fish as you can and supplement with fibe. This is what some of my friends who have crohns, colitis, Irritable bowl sindrom. I'm not a doctor but I've lived it and if I knew then what I know now I would have used my diet and bacterial supplementation and excercise to help heal it. I'd be happy to answer anyother questions (or at least try) Remember i'm not a doctor but I lived with this for many years.