Substance: Dr X (I PM'ed you the name) was one dr at mayo who said I just had GAD (that ticked me off!!!). I can't remember the name of the other guy who just felt my nuts and laughed at me "ha ha, these are small". I was thinking, wth kind of "mayo" doctor is this? The doctor specialized in "adrenal biosynthetic disorders". Maybe he was a good dr but he just had too much fun joking about my TRT testicles.
I found out that the mayo clinic here in AZ and the one in FL are NOT as good as the original mayo clinic.
One evening after eating dinner I checked my BP and it was 210/120. I was having palpitations and thought my heart stopped at one point. My arms went numb, I had a headache and ringing in ears. So I went to the mayo ER. They kept me for 3 hours in the waiting area. Then they got hostile when they took me back. I was in the room for 10 minutes before they took one supine blood pressure reading and kicked me out.
I then drove myself to another ER (because I was still at 170/100 and HR around 120). I couldn't believe they discharged me after I told them how horrible I felt. Honestly they were too full that evening. Not enough beds.
Got to the new ER at 2:30AM and stayed until 6:30 AM.
They gave me several liters of fluids through an IV. Turned out that I was very dehydrated. After this, I felt better and my blood pressure went right down to 105/65, heart rate 65. I could barely walk in the ER at 2AM, but I could have ran while carrying a person on my back when I left at 6:30 AM, with no sleep.
Although I was tired, I hadn't felt that good in a long time. They told me to drink kid's Pedialyte and follow up. Then I went to a homeopathic doctor and he told me to consider fludrocortisone. I decided not to take it.
PureChance: You might be on to something. I cannot sweat at all! I just run out of breath and get dizzy, but I cannot break a sweat. I used to sweat like a pig.
My cortisol is usually around 18 in the AM then drops to normal levels in the afternoon. The cortisol result above was actually from around 11am. However 24 hour urine cortisol is LOW... but my GP says the urine test is worthless.
Yes I tried small doses of cortef, even just a half mg and once tried rubbing cortisol cream on my back (as per those thyroid sites), but each time I do this I get what they call a "thyroid dump".... high BP, HR, fever, diarrhea, etc.
To be fair, I will give the benefit of a doubt that perhaps this is all in my head. I always try not to be difficult about these things and I'm willing to experiment on myself.
[just want to add that if I have a stressful day like problems at work, then this same "thyroid dump" happens in the evening; I guess because my cortisol goes up. I'm guessing T4 is pooling up and then cortisol kicks in and converts too much T4 into T3 too quickly (which is normally being stored as RT3 in my body). I'm not sure if this is part of the other hormone problems or if I'm straying into a different topic]
By the way I'm not trying to pretend to be a doctor beacuse obviously I don't know what the heck is wrong with me. I'm just going by the stuff I've read online and in some books.
Any other ideas or should go to a med university? Not sure where to go.