age = 43
height = 5’6
waist = 32”
weight = 144lb
First I want to thank the good people on this forum for the excellent information that has been shared and also to all the members & mods who give up their valuable time to help people here. It’s already been a massive help to me and I very much appreciate the help/education I’ve been getting on the forums. I’ve had a lot of issues with doctors in the UK. It always seems to be a battle getting help here ):
Apologies in advance for such a long post!
Describe body and facial hair: Slim build with a fair bit of facial and body hair… Beard, legs, chest and back.
Describe where you carry fat and how changed: Never carried much fat, but have put on a little belly fat over the last year or so.
Health conditions, symptoms [history]: Two undescended testicles and was operated on when I was about four years old. I think some damage may have been done to my testicles when they operated as I have a lot of scarring on my testicles. Testicle size are pretty small which I have no idea is anything to do with the undescended testicle issue and development….
I was a very healthy and active child and teenager up until I was about 17. Used to play a lot of sports and played to and international level and represented my country. I did a lot of training but one day I suddenly started having problems with my joints and also issues with cold hands and feet. Long story short spent a few years going from doctor to doctor trying to find out what was wrong with me and in the end they ‘labelled’ me as having Juvenile Systemic Scleroderma which is an autoimmune disease. Plus with the added bonus of Reynolds Phenomena. My main symptoms with this disease were joint and muscle pain, fatigue, very cold hands/feet and very low immune system which lead me to picking up a lot of bugs and viruses. I seemed to just go from one virus to another. Always recovering form something. My glands were and still are sometimes swollen at bottom of my neck (2-4 little pea sized glands) and also the larger gland just below my ears often gets sore and enlarged.
My Systemic Scleroderma has basically been stable for over 20 years now and has actually improved a lot which I think is due to better nutrition, exercising more and less alcohol and recreational drugs. (I drank a lot and did recreational drugs some weekends when I was a teenager and in my tweeties)
*Health conditions, symptoms [Recent history]: As I mentioned above, my Systemic Scleroderma has been stable for some years but other symptoms have popped up which I suspect may not be related to my Systemic Scleroderma and could well be hormone related….
Very fuzzy head. I find it very hard to think straight most of the time and it seems to be getting worse and worse over the last five years or so.
Very spaced out feeling a lot of the time.
Find it hard to concentrate. - Tired a lot of the time even with good sleep. I normally wake up feeling more tired than I did when I went to bed.
Feel way more emotional that I ever did. Often get teary eyed watching silly stuff on TV.
Memory is very poor. Doesn’t help that my head is so fuzzy!
Often feel I cannot cope doing simple stuff that really shouldn’t stress me out.
Feeling less like facing people in public.
Feel a lot more stressed nowadays. - Sometimes feel quite depressed. (Never had this in the past)
Very low sex drive… Never had much of a sex drive but it’s gotten worse and worse over the years.
Seem to have an issue with fruit/veg sugars. I get very sleepy why I have fruit or vegetable juices. Also 40-60g of oats in a smoothie will make me very sleepy. (carbs etc)
Other notes: My wife and I have been trying for a baby for about 8 years and we have started the IVF process. Also I seem to have very low sperm volume nowadays, which obviously does not help. The volume has really decreased a lot in the last 5 years.
Rx and OTC drugs, any hair loss drugs or prostate drugs : No Rx drugs, have taken OTC drugs in the past such as Paracetamol and Codeine for pain relief. * Did take recreational drugs in my teens and twenties. (speed & ecstasy)
Alcohol/Cigarettes: Never smoked and drink very little alcohol nowadays. On average less than one glass beer/wine per week.
Describe diet [some create substantial damage with starvation diets]: All in all a very balanced diet with lots of fresh fruits and veggies, meats and fish. Very little fried or processed foods. ** Just started a pescatarian diet a month ago.
Describe training [some ruin their hormones by over training]: As I mentioned above, I did a lot of sport and training when I was a teenager. (13-17) I have done no training since then and the only expertise has been walking the dog every day. Though last year I started testing my joints with some weight lifting thee days a week. I did this for three months last year and it definitely helped my joints and general wellbeing. I stopped in May last year because I was travelling and then was unwell for months.
Testes ache, ever, with a fever?: Sometimes have aching testicles and they often feel ‘uncomfortable’ and kind of sensitive. Especially around the area where the join the body. (I think no fever though) They often kind of pull up towards my body and shrink in size. (Like when exposed to cold) On a number of occasions I have had strong pain in the testicles when urinating. I think this has been a UTI… * I also have a number of cysts in my testicles which have been scanned a few times to check for cancer.
How have morning wood and nocturnal erections changed: I don’t recall getting a lot of nocturnal erections over the past 10 years of so. Now and again I guess.
Note: I had a bunch of bloods done privately last year to check for food intolerances. (I thought that might be the issue then. *Only food that was really an issue was milk) The tests I had done also included other tests which I have included below for reference…
I recently managed to get my GP to send me to hospital for an adrenal short synacthen test and growth hormone function test. Unfortunately the only info my doctor gave me about the test results were that “they were in the normal range”, or “the response was in the normal range”. Not very helpful really. I have also had some private hormone tests done last October.
lab results with ranges:
October 2017 Bloods:
Testosterone 16 nmol/L (7.60-31.40)
Free Testosterone (Calculated) 0.357 nmol/L (0.30–1.00)
17-Beta Oestradiol 48.1 pmol/L (0.00-191.99)
SHBG 27.7 nmol/L (16.00-55.00)
Prolactin 164 mIU/L (86.00-324.00)
Just Added Below Results To Post On 06/Feb 2018)
LH - 20/dec/2017 = 5.8 iu/L (Range: 1.70-8.60 iu/L)
FSH - 20/dec/2017 = 8.8 iu/L (Range: 1.50-12.40 iu/L)
Prostate Screen: (Had this done because I was going to start HGH Therapy)
Prostate Specific AG (Total) 1.02 ug/L (0.00-2.00)
Prostate Specific AG (Free) 0.391 ug/L (0.00-0.90)
Free: Total Ratio 0.38 (0.19-1.00)
Tumour Markers: (Had this done because of my increased testicular cancer risk and because I was starting HGH Therapy)
HCG 0.2 IU/L (0.00-3.00)
August 2016 Bloods:
Growth Hormone < 0.1 ug/L (up to 0.8)
Estradiol < 12 ng/L (< 30)
Testosterone 5030 ng/L (3000-10000)
Androstanediol-glue 10.07 ug/L (3.4-22)
DHEA Sulfate 198 ug/dL (85-390)
Ab to thyroglobulin 16 kU/L (<60Neg)
Anti-TPO <28 kU/L (<60Neg)
Thyroglobuline 18.5 ug/L (0.7-84.0)
TRAb 0.3 U/L (0-1)
Cortisol (8h) 19.6 ug/dL (7-25)
Transcortine + 74 mg/L (20-50)
Cortisol Free (8am) - 6.4 ug/L (10-30)
TSH 2.48 mU/L (0.3-4.5)
T3 Free 5.02 pmol/L (3.23-6.47)
T4 Free 16.49 pmol/L (9.03-23.22)
Insulin 27.7 pmol/L (21-153)
HbA1c NGSP 5.2 % (4.0-6.0)
HbA1c IFCC 33.4 mmol/mol (20.2-42.1)
Sodium 139 mmol/L (135-145)
Potassium + 5.8 mmol/L (3.3-5.7)
Total Calcium 2.28 mmol/L (2.05-2.65)
Ionized Calcium 1.00 mmol/L (1.00-1.15)
Erytrocytair Magnesium 5.26 mg/dL (4.40-5.80)
25-Hydroxy -Vitamin D 37.3 ug/L (30.0-60.0)
3rd Generation PTH 29 ng/L (14-72)
Triglycerides + 190 mg/dL (30-170)
Total Cholesterol + 208 mg/dL (140-200)
HDL Cholesterol 44 mg/dL (40-109)
LDL Chol.(Calculated) + 126 mg/dL (0-114)
Cholesterol/HDL-C 4.73 (2.8-4.97)
Total Protein 71.1 g/L (57-82)
IgA 1.26 g/L (0.80-4.06)
Ceruloplasmine 0.31 g/L (0.25-0.44)
hs CRP + 1.16 mg/L (0-1.00)
Alkaline Phosphatase 189 U/L (100-300)
Gamma-GT 59 U/L (8-61)
LDH + 458 U/L (240-420)
Vitamin E 11.9 ug/ml (10.0-19.0)
Vitamin E/Chol 5.72 mg/g (5.4-9.2)
Vitamin A 70.4 ug/dL (43-111)
Coenzyme Q10 - 539 ug/L (670-990)
Selenium 100 ug/L (90-143)
Zinc 108 ug/dL (84-135)
Copper 113 ug/dL (86-148)
Vitamin B6 141 nmol/L (88-456)
Amylase + 117 U/L (28-100)
Lipase 40 U/L (12-53)
Icteric Index + 1.7 (<1.6)
Hemolysis Index 9.7 (<70)
Haemoglobin 15.0 g/dL (13.5-18.0)
Haematocrit 45.8 % (40-54)
RBC(Erythrocytes) 5.21 106/uL (4.5-5.9)
MCV 88 fL (80-95)
MCHC 33 g/dL RBC (31-36)
MCH 29 pg/cell (27-32)
WBC(Leucocytes) 4.92 103/uL (3.6-11.0)
Differential Leukocyte Count:
Neutrophils 60.6 % (45-70)
Lymphocytes 29.7 % (18-49)
Monocytes 7.5 % (1-10)
Basophils 0.2 % (0-2)
Platelets Count 217 10*3/uL (150-400)
Vitamin B12 385 ng/L (300-835)
Active-B12 - 84 pmol/L (106-170)
Erythrocytaire Folate + 656 ug/L (140-628)
Ferrin 206 ug/L (50-290:opt)
Uric Acid 6.1 mg/dL (3.4-7.0)
Urea 24 mg/dL (10-50)
Creatinine 0.81 mg/dL (0.70-1.30)
Lead <5.0 ug/dL (<25MPV=40)
Cadmium 0.16 ug/dL (0-0.4)
Mercury 0.19 ug/dL (0-1)
Nikkel <0.50 ug/L (<1.0MPV=10)
IgE - 16 kU/L (20-100)
Supplements I take: D3 10k iu and vitamin B12. (Am starting a Solgar Selenium 200ug and Solgar Kelp supplement soon) I would like to know what I can take for IR? I was considering one of the iodine tincture products on Amazon UK. Is that a good idea for IR?