T Nation

Ankylosing Spondylitis, Job 1!

Hi everyone, I have Ankylosing Spondylitis and if your reading this, you may have it too or not.

The first thing i want to say is that its great getting tips on training and working out from guys on this site for the most part they will work if they are right for you.

However, medical advice needs to come from your doctor. I wanna clear that last statement up, I mean a specialist. In the case of AS a Rheumatologist! they treat this shit every day. they will try different meds to help with the inflammatory pain, for some of us its the most debilitating thing you could ever have. stops you sleeping, stops you concentraing, stops you from being able to stand up staight,stops you breathing right. for some its uveitis. feeling exhausted regardless of what you eat OR how much sleep you have had.

Theres plenty of other stuff too, this is one of mine/ For two straight months of my life every thing i did revolved around going to the toilet about 20-30 time a day. i was hospitalised because of it, the gastro at the hospital had no idea the dr patel that gave me the 70 minute endoscopy found nothing,i had no sedative either lol. got to see where my apendix was and the entrance to the stomach. but my SI pain flare was huge at the time, never even thought to mention it. The list can go on.

If you have AS, most of the time its already had a chance to ruin your body/life. sometimes its caught early before it get the chance to do that.

Forget the Stupid advice people give you not knowing what AS even is and certainly dont try Alternative medicine hoping it will work, use it WITH what your docs give you.

I lived my life trying to take as little pills and medicines as possible. I take Humira and it work, its no cure. it helps me live instead of cope.

The best advice you need is stay from anyone promoting chiropractic work, see a physio who specialises in Spinal disease and they will help to rebuild your body from the ground up. they will start with your core,posture and flexability. you can do more than you can just now.

Your level of spinal fusion is going to determine what you can and cant do. if you have just been diagnosed and dont know much about it look for sites about the disease, people with the disease are the one to ask.

Anything you do, you will have to do better than everyone else. and you can.

I have no fusion as yet and because of humira i am now almost symptom free,im never doing 1 rep max again because i cant afford an injury but i can multi rep lower weights longers than bigger guys and thats strong in my book.

Keep kickin AS

The bamboo spine disease… Does your dad also have AS? =)

For the rest, the best of luck with rehabilitating!

[quote]kalel4432 wrote:
Hi everyone, I have Ankylosing Spondylitis and if your reading this, you may have it too or not.

The first thing i want to say is that its great getting tips on training and working out from guys on this site for the most part they will work if they are right for you.

However, medical advice needs to come from your doctor. I wanna clear that last statement up, I mean a specialist. In the case of AS a Rheumatologist! they treat this shit every day. they will try different meds to help with the inflammatory pain, for some of us its the most debilitating thing you could ever have. stops you sleeping, stops you concentraing, stops you from being able to stand up staight,stops you breathing right. for some its uveitis. feeling exhausted regardless of what you eat OR how much sleep you have had.

Theres plenty of other stuff too, this is one of mine/ For two straight months of my life every thing i did revolved around going to the toilet about 20-30 time a day. i was hospitalised because of it, the gastro at the hospital had no idea the dr patel that gave me the 70 minute endoscopy found nothing,i had no sedative either lol. got to see where my apendix was and the entrance to the stomach. but my SI pain flare was huge at the time, never even thought to mention it. The list can go on.

If you have AS, most of the time its already had a chance to ruin your body/life. sometimes its caught early before it get the chance to do that.

Forget the Stupid advice people give you not knowing what AS even is and certainly dont try Alternative medicine hoping it will work, use it WITH what your docs give you.

I lived my life trying to take as little pills and medicines as possible. I take Humira and it work, its no cure. it helps me live instead of cope.

The best advice you need is stay from anyone promoting chiropractic work, see a physio who specialises in Spinal disease and they will help to rebuild your body from the ground up. they will start with your core,posture and flexability. you can do more than you can just now.

Your level of spinal fusion is going to determine what you can and cant do. if you have just been diagnosed and dont know much about it look for sites about the disease, people with the disease are the one to ask.

Anything you do, you will have to do better than everyone else. and you can.

I have no fusion as yet and because of humira i am now almost symptom free,im never doing 1 rep max again because i cant afford an injury but i can multi rep lower weights longers than bigger guys and thats strong in my book.

Keep kickin AS

[/quote]

HUH?

[quote]kalel4432 wrote:
Hi everyone, I have Ankylosing Spondylitis and if your reading this, you may have it too or not.

The first thing i want to say is that its great getting tips on training and working out from guys on this site for the most part they will work if they are right for you.

However, medical advice needs to come from your doctor. I wanna clear that last statement up, I mean a specialist. In the case of AS a Rheumatologist! they treat this shit every day. they will try different meds to help with the inflammatory pain, for some of us its the most debilitating thing you could ever have. stops you sleeping, stops you concentraing, stops you from being able to stand up staight,stops you breathing right. for some its uveitis. feeling exhausted regardless of what you eat OR how much sleep you have had.

Theres plenty of other stuff too, this is one of mine/ For two straight months of my life every thing i did revolved around going to the toilet about 20-30 time a day. i was hospitalised because of it, the gastro at the hospital had no idea the dr patel that gave me the 70 minute endoscopy found nothing,i had no sedative either lol. got to see where my apendix was and the entrance to the stomach. but my SI pain flare was huge at the time, never even thought to mention it. The list can go on.

If you have AS, most of the time its already had a chance to ruin your body/life. sometimes its caught early before it get the chance to do that.

Forget the Stupid advice people give you not knowing what AS even is and certainly dont try Alternative medicine hoping it will work, use it WITH what your docs give you.

I lived my life trying to take as little pills and medicines as possible. I take Humira and it work, its no cure. it helps me live instead of cope.

The best advice you need is stay from anyone promoting chiropractic work, see a physio who specialises in Spinal disease and they will help to rebuild your body from the ground up. they will start with your core,posture and flexability. you can do more than you can just now.

Your level of spinal fusion is going to determine what you can and cant do. if you have just been diagnosed and dont know much about it look for sites about the disease, people with the disease are the one to ask.

Anything you do, you will have to do better than everyone else. and you can.

I have no fusion as yet and because of humira i am now almost symptom free,im never doing 1 rep max again because i cant afford an injury but i can multi rep lower weights longers than bigger guys and thats strong in my book.

Keep kickin AS

[/quote]

Might I ask how you were diagnosed? my rheum claimed that there is no way to diagnose it, you take a guess at it and start throwing meds at it to see if they help. that sounded like a crock to me so I am currently looking for a different doc

There would be inflammatory markers in your blood, its common to check for the gene HLA-B27 but active disease shows inflammation of the sacroiliac joints. A full history is also helpful. The disease has a typical progression and can go mis/undiagnosed for about a decade.

Looks like this thread has had no activity for awhile
But I too have AS
Diagnosed several years ago.
Humira for awhile
On embrel now
I start training for a strongman comp tomorrow
Ill be in the 200lb weight class so ill have to drop some weight
Been using 5/3/1 for over a year now with much success
I’m currently looking to replace the bench press with something more applicable to strongman
Already Subbed front for back squats and trap bar deads forstandard to help with the car dead
Both subs have been much more back friendly to me as well

Looks like this thread has had no activity for awhile
But I too have AS
Diagnosed several years ago.
Humira for awhile
On embrel now
I start training for a strongman comp tomorrow
Ill be in the 200lb weight class so ill have to drop some weight
Been using 5/3/1 for over a year now with much success
I’m currently looking to replace the bench press with something more applicable to strongman
Already Subbed front for back squats and trap bar deads forstandard to help with the car dead
Both subs have been much more back friendly to me as well

Looks like this thread has had no activity for awhile
But I too have AS
Diagnosed several years ago.
Humira for awhile
On embrel now
I start training for a strongman comp tomorrow
Ill be in the 200lb weight class so ill have to drop some weight
Been using 5/3/1 for over a year now with much success
I’m currently looking to replace the bench press with something more applicable to strongman
Already Subbed front for back squats and trap bar deads forstandard to help with the car dead
Both subs have been much more back friendly to me as well