Hello there, I’ve have used finasteride from 24 to 27, I stopped 1 year ago (28 currently).
During those 3 years I definitely had sides (both sexual and mental) but didn’t realize or didn’t attribute to fin, they crept up on me slowly. I didn’t know ANYTHING about pfs before starting, just the common libido/erection/semen sides that were supposedly temporary. By the end of it I was an anxious/depressed mess, my erections were shit and my ejaculations were almost dry.
I started researching if this could be because of finasteride and I found all about all the horror stories. So I tappered off fin for 2 months and stopped.
The following months were nightmare fuel, I was crying all the time and though I never thought seriously about suicide, I was pretty damn close (of thinking about it, not doing it). But to be honest I don’t know if that was because of all my hormones going wacko after stopping or just because of the FEAR of reading all that and learning about the poison I was taking.
Anyway, fastforward a year and here I am. Some stuff definitely got better, like my erections and semen/ejaculations. I also got morning wood again (I lost it sometime during fin). However, besides some other sides which are not that important, I’m mostly struggling with libido/motivation and sleep (and lack of emotions/social withdrawal). I kid you not since stopping fin I woke up 2-4 times a night (or even more) for a whole year, I also get random twitches in the body (altough after stopping it was insane, now it has subsided a bit but I still get them almost daily).
I’m gonna be honest with you, even tough I don’t feel normal, I wouldn’t know if I should blame Finasteride, or some sort of “post traumatic experience” I developed because of it. I mean I’m not gonna lie, I think about it every single day, I also check all the forums about it almost daily. No way someone is gonna get better if they constantly think they are sick. I don’t know if I really have pfs or if I conviced myself I have it. Also the sides are definitely real but 4 years have passed since my first pill so I’m also struggling to remember exactly how I felt 4 years ago, you know, it’s hard to compare.
Anyway, enough of my personal story. I want to feel better already, but I don’t know what will it take to get there. Just the thought of “having used finasteride” is wrecking my mind and I don’t know how to tackle that, but I’m sure if I get better in other aspects (like sleep and libido) I will be able to leave all this behind eventually.
I’ve done nothing the whole year except taken vitamin D (I was deficient). I’m gonna be honest, my current lifestyle is shit, unemployed, having majored in something I didn’t like, going to sleep super late, staying with the computer a lot, no exercise, and barely leaving the house (the last bit mostly because of the pandemic). I’m only telling you this because I try to keep and objective view and all this could point to a psychological cause. The thing is, my life was ALWAYS like this (or at least pretty similar) and I always had good libido and erections, the problems started only after taking fin.
Do you think a lifestyle change would be enough? I also read on other forums that HCG (and maybe clomid) seem to be the key (the key being LH/HCG to produce the whole cascade of hormones downstream). A lot of pfs sufferers got better with this and some say it cured them. However after using fin I’m scared of even using aspirin, imagine my fear of hormonal stuff and specially injectables. I don’t really like the idea of shutting myself down. Supposedly HCG low dose for 6 months would do the trick but I’m super fearful of never recovering my natural gonadotropins production after using it, and I’m not THAT desperate, my sides are relatively mild compared to other sufferers, and that’s the main problem. Im currently in a state of limbo where I don’t know if I should just stay like this and live a “below average” life wishing for it to get better with time or risk it and maybe make myself worse (or better).
K this is getting pretty long sorry about that, the last thing I’m gonna do is show you my bloods, sadly I don’t got pre fin blood to compare them (the last one I took is almost a year old, around the time of stopping fin, I need to take new ones):
MAY 2019 (I was still on fin):
serum T: 4.7 ng/mL 1.6 - 7.3
bioavailable T: 2.2 ng/mL 0.8 - 6.0
SHBG: 33.7 nmoL/L 10.0 - 57.0
free T: 97.5 pg/mL 26.0 - 170.0
SEPTEMBER 2019 (1 month after stopping fin)
prolactin: 8.3 ng/mL 3.5 - 19.4
serum E2 < 18 pg/mL 11- 44 pg/mL (not sensitive)
serum T: 4.8 ng/mL 1.6 - 7.3
bioavailable T: 2.3 ng/mL 0.8 - 6.0
SHBG: 32.6 nmoL/L 10.0 - 57.0
OCTOBER 2019 (my last bloods, 2 months after stopping fin)
serum E2 36.0 pg/mL 11- 44 pg/mL (not sensitive)
serum T: 5.9 ng/mL 1.6 - 7.3 (better)
bioavailable T: 3.2 ng/mL 0.8 - 6.0
SHBG: 29.4 nmoL/L 10.0 - 57.0
FSH 4.6 mUI/mL 1,0 - 12,0 mUI/mL
LH 2.2 mUI/mL 0.6-12.1 mU/mL (pretty low but could be worse I guess)
Anyway, that’s all I’ve got, no DHT sadly because in this shithole of a country they don’t test for it (btw, just out of curiosity, is international testing a thing? Can I send my blood to other countries and test for DHT? or is it wishful thinking?)
Thanks for reading and sorry for long read.