New guy here. I know that most of my issues will fall outside the scope of these forums, but I’m hoping for any advice you’re able to give me.
I’m 39, exercise daily, sleep well, and my diet has been dialed for years. Prior to the lockdowns, I was in the best shape of my life (5’11, 163lbs, ~10% body fat). I was starting a clinical rotation as a med tech and needed a TDAP booster. A few days later, I started falling apart. Severe joint pain and instability (particularly of the C & T spine), bilateral parasthesia of the hands, vertigo, trouble swallowing. Symptoms resembled Ehlers Danlos Syndrome (a congenital connective tissue disorder). Rheumatologist ruled out RA, lupus, etc. Diagnosed me with an underlying hypermobility spectrum disorder exacerbated by an adverse reaction to the vaccine. He wrote me a script for PT and NSAIDs and sent me on my way.
I slowly improved, though my exercise tolerance never fully recovered. I thought the worst was behind me until the initial symptoms returned about 6 weeks ago. I have some theories, but I’m not sure why I relapsed. I’m throwing the kitchen sink at the problem and seeing every specialist I can in hopes of finding some relief. So far, I’ve started cold laser therapy, neuro PT, and I’m considering prolotherapy to address the spinal instability.
Along the way, I started reading about peptide therapy and decided to seek out an anti-aging clinic to advise. There are EDS patients who have had luck with BPC 157 & Ipamorelin. I found a clinic, and the doctor ran some bloodwork. She’s putting me on Ipamorelin (hasn’t arrived yet), a course of BPC 157 to follow, but she’s also started me on HCG monotherapy. Here’s where I’m hoping you guys might have some insight.
After reviewing my blood work, she thought my test levels could be improved. Since I’m not currently able to lift, her thinking is that further muscle loss will exacerbate the joint instability. I’ve already lost about 10lbs, and she wants to stave off sarcopenia as much as possible. I told her that I’m not keen on taking test indefinitely, at least not yet. She prescribed a course of HCG monotherapy, 500iu 3x/week for at least 3 months. Here are my labs:
Total test: 582 (264 - 916 ng/dl)
Free: 11.7 (8.8 - 25.1 pg/ml)
DHEA: 311 (102.6 - 416.3 ug)
SHBG: 34.5 (16.5 - 55.9 nmol/l)
Estradiol: 21.2 (7.6 - 42.6 pg/ml)
IGF-1: 146 (90 - 278 ng/ml)
TSH: 2.830 (.45 - 4.5 uIU/ml)
T3, free: 2.7 (2.0 - 4.4 pg/ ml)
T4, free: 1.23 (.82 - 1.77 ng/dl)
She didn’t run LH, FSH, etc. Just CBC and lipids, all in range.
I didn’t do my usual due diligence before taking my first injection, as I’m desperately grasping at straws in hopes of getting my life back to some degree. I went searching for info after I started having intense anxiety, which is what brought me here. Having read some accounts of HCG-related anxiety and other concerns related to monotherapy, I’m hoping to get a reality check on the wisdom of this part of her treatment plan. Any advice would be greatly appreciated.
Thanks in advance for your help.