32 Y/O, Dying of Old Age

test

So I pretty much gave up on TRT after about 6 months. I started focusing on diet (paleo-ish, with plenty of fats, veggies, little sugar and grains) and also focused on getting Vitamin D, B12, magnesium and zinc levels up. These changes made more improvement than the TRT ever did. However, my ED/libido got worse over time and I still didn’t feel like I was 100% so I revisited some of these issues.

In the Fall of 2012 I saw a Urologist and Endocrinologist who ran more bloodwork and had an MRI done. The pituitary was clear of any obvious problems on the MRI, but the bloodwork showed even lower T than ever, and estradiol still pretty high. The endocrinologist put me on T-replacement patches, which I did for two months. I reacted like before and found I would initially feel better and after a brief period, I’d be right back where I started. After two months I started having weird anal-itching issues, so I stopped the patches and gave up again.

Fast forward to Spring 2013 - My wife was visiting her IVF fertility doc and mentioned my issues and he responded I needed an aromatase inhibitor and recommended a fertility urologist that could probably help. So I saw that doctor around May 2013, who put me on Clomid (for the past 6 weeks or so). I’ve felt like there’s been some mild improvement that has continued to date, but not as much as I would have expected.

My erections/libido are still low, but I think I’ve become a little leaner in the past month. I feel roughly the same most of the time. This doctor had mentioned that he might try Hcg and tamoxifen if the clomid didn’t work for me. I’ve called him (haven’t actually spoken with him yet) about trying the Hcg, but I think he might want me to try tamoxifen alone. Would this provide any advantage over clomid?

Here is a summary of my bloodwork:
date Desc. Val Range Unit


6/4/2013 Tot. T 171 250-1100 ng/dL
6/4/2013 LH 1.6 1.7-? ?
6/4/2013 Estradiol 10.5 ?
9/18/2012 Tot.T 146 250-1100 ng/dL
9/18/2012 FreeT 21.3 35-155 pg/mL
8/22/2012 estradiol 79.7 <56 pg/mL
8/22/2012 Tot.T 82 160-726 ng/dL
8/22/2012 FreeT 16.7 50-210 pg/mL
1/25/2011 Estradiol 124* <56 pg/mL
1/25/2011 Tot.T 602* 160-726 ng/dL
1/25/2011 FreeT 143.4* 50-210 pg/ML
9/28/2010 Tot.T 295 262-1593 ng/dL
9/28/2010 FreeT 90.7 50-210 pg/mL

  • Taking Testosterone replacement at the time

The two treatments I would really like to consider are anastrozole alone (but my latest blood work from 6/13 doesn’t seem to support that as the best course of treatment right now) or HCG (with or without anastrozole). Does anyone have any experience with these protocols or any thoughts in general?

After u me mentioned the itchy anus I was going to say something about Lyme and co infections, then I read up and saw you have tested positive for Lyme in the past. 6 weeks of antibiotics is not enough in Late stage Lyme and I’m wonder what co infections were found and what you have been treated for?

I suggest ordering a co Infection test plus a Lyme panel from Igenex or fry laboratories I think you have some issues still to be dealt with my friend

I don’t think my Lyme was very late stage since I had tested negative earlier that year (probably 6 to 8 months prior to my positive test). I definitely improved from the round of antibiotics, FWIW.

Can you clarify what you mean by “co infection”?

Thanks for the info.

Lyme does not live in the blood my friend. One could test negative and then test negative and then test positive while it being there the whole time. Lyme hides in a number of different ways and can be very difficult to kill. It hides in biofilms and cysts and can be virtually undetectable in blood tests… Where you treated by a LLMD ? I’m guessing not.

There are over 100 different co infections bartinella and babesia and mold infections are just a couple of examples.

You really need to research this subject.

Look up fry laboratories for a co infection panel

Find a Lyme literate doctor

Igenex is the best lab for Lyme testing and they do DNA testing now.

Where are you located?

I wasn’t tested by an LLMD. And I live in south central Pennsylvania, in a house in a heavily wooded lot. I’m definitely in tick and Lyme country. In fact I have kept a flock of chickens running around my yard for the past couple of years to help cut back on their population (which has worked surprisingly well).

I’ll look into this more. I had assumed I was past all of this since I don’t have the symptoms anymore. (ie. no more falling asleep at my desk, constant fatigue, tingly face, weakness, weight gain, etc.) But it is certainly worth revisiting.

Is there any research you have found regarding testosterone/estrogen/other hormone levels and Lyme? I have seen mentions of a relationship, but they’re always so vague and don’t even site an anecdotal example, much less any quantitative proof. I’d specifically be interested in how much Lyme might lower testosterone or raise estrogen. (My testosterone is now lower than when I had an active case of lyme disease)

[quote]iw84aces wrote:
Lyme does not live in the blood my friend. One could test negative and then test negative and then test positive while it being there the whole time. Lyme hides in a number of different ways and can be very difficult to kill.[/quote]
There are over 100 different co infections bartinella and babesia and mold infections are just a couple of examples.

Find a Lyme literate doctor

[/quote]

jeffr48,

Let me jump in since I have been down this road. I’m located in the Poconos, 1 hr. north of Allentown. I was hit with Lyne a few years back and I was also on TRT. TRT is a non-factor in relationship to Lyme. My diagnoses cam quick since I remember the high fever 2 weeks earlier and was displaying a nasty sunburn type of rash.

Lime disease is caused by a bacteria. If you receive the correct treatment of antibiotics and tested negative twice, it’s gone. Ow, by the way, without getting into details, the test IS NOT for the Borrelia bacterium that causes your symptoms, it is for the antibodies that is produced by your body try and fight bacteria. So iw84aces is right on the mark here. That expanding rash you should have had is the bacterium moving through the skin.

I went to my GP and he sent me to a Disease Specialist where my antibiotics were chanced. He also tested me for some other nasty things so one again,
iw84aces advice on co-infections should be taken.

Here’s the take away. Get to a Disease Specialist, if he clears you then, that’s all you can do. And this is important; just because the Lyme is gone, it does not mean you may not show symptoms from having it. I equate it to being shot with a gun; once the bullet is out it doesnâ??t mean there is no longer damage that you will have to contend with. On a positive note; I was back in the gym 2 months later after my diagnosis. It’s about 3 years later now and I am at the top of my game.

They don’t even treat Lyme properly and ignore a pandemic in the United States and canada

The Lyme spirochete is like a small drill and can find its way into your bones and every organ in the body.

The co infections are vast and with so many you don’t know what is left over.

There is currently an uproar in the Lyme community, in canada it’s at the top of the list in congress to be dealt with because people are losing it over this under diagnosed, under treated disease…

I will make a thread for everyone soon and I will find as much info as I can.

Problem is here they seem to take down all my links so its pointless for me to waist my time.

A young girl I know was told " it’s all in your head " until she finally was paralyzed and ended up in Florida for treatment. When she got there here endocrine system was shut down and had to be prescribed

Estrogen

Testosterone

Dhea

Pregnonalone

Progesterone.

After three months of treatment she walks but still has mold in her body and the doctor has offered to pay for her hotel and accommodations and treatments as the money has run out…

I will make a new email somehow soon but I am sick myself so I have alot on my plate…